Dying Alone

  There are so many nightmares with this pandemic. One of them is the prospect of catching Covid-19,  being hospitalized and then being deprived of loved ones and caregivers in your final days. This tragedy may at times be unpreventable. But according to several discrimination complaints filed across the country, it did not have to happen that way. The following is an article from NPR … Continue reading Dying Alone

No, you didn’t read this wrong! Amtrak was going to charge $25,000 for two wheelchair users.

    Thank you, Joseph Shapiro, for again shining a light on some of the most bizarre (attempted, in this case) injustices towards people with disabilities! https://www.npr.org/2020/01/20/798000308/amtrak-to-drop-25-000-ticket-price-for-two-wheelchair-users-after-complaints Continue reading No, you didn’t read this wrong! Amtrak was going to charge $25,000 for two wheelchair users.

SHOULD I DISCLOSE MY MS IN A JOB INTERVIEW?

QUESTION: Because of my multiple sclerosis, I walk with a cane. Next week, I’m going to have a face-to-face interview for a job I really want – paralegal in a public interest law firm. I’m pretty sure my potential employer cannot ask me why I use a cane, but it’s something that I am not embarrassed about and I don’t want to shy away from … Continue reading SHOULD I DISCLOSE MY MS IN A JOB INTERVIEW?

Gay Pride – and Accessibility

In the article below, Bani Amor from CNN puts forth some excellent ideas about making PRIDE and other events accessible to everyone. We all know there are a lot of things to protest these days. But as the recent PRIDE events have reminded us, there is also much reason to celebrate. As someone who believes in protest as well as celebration, I try to be … Continue reading Gay Pride – and Accessibility

A Stain on Ali Stroker’s Triumphant Evening

https://www.huffpost.com/entry/ali-stroker-tony-disability-community_n_5cfe766be4b0aab91c0966c1 In 1988, when Joseph P. Shapiro was a reporter for U.S. News and World Report, he was asked to write a news story about a gentleman who had won the “Man of the Year” award from the National Multiple Sclerosis Society.  “They had put him up in a hotel across the street from the club where he was to be feted,” Mr. Shapiro writes. … Continue reading A Stain on Ali Stroker’s Triumphant Evening

The Long Walk to the Coffee Shop

My rollator is my freedom. There’s no question about that. It allows me to observe the world while I’m walking, instead of constantly looking down to avoid pebbles or cracks that might (and do) send me reeling. Liberating as it is, the rollator has its drawbacks. It’s big and bulky, and it’s forever a challenge to figure out where to stow the dang thing when … Continue reading The Long Walk to the Coffee Shop

What the ADA says – and does NOT say.

The Internet is indeed a mixed blessing. The good news is that there’s an amazing amount of information out there. The bad news is that there’s an amazing amount of information out there. As an individual with multiple sclerosis, I have of course surfed the web, looking for answers. Once I learned how to separate the truthful and credible information from the wacky and even … Continue reading What the ADA says – and does NOT say.

Michael Volpe: Walking the Walk and Talking the Talk

Michale Volpe testifying before the Oregon Transportation Commission, October 19, 2018 ______________________ You probably have never thought much about that striped area alongside all disabled parking places. And you also likely haven’t noticed that quite frequently, this space is inhabited by all manner of vehicles – cars, delivery trucks, motorcycles, etc. No need to feel guilty. There are usually no signs present, so it’s a … Continue reading Michael Volpe: Walking the Walk and Talking the Talk

The Brilliance of the Disability RIghts Movement

I won’t sugar-coat it: climbing up stairs can be exhausting, embarrassing and dangerous when you have multiple sclerosis. And of course, there’s no point in even trying if you are a wheelchair user. That’s why the Americans with Disabilities Act (ADA) has been such a godsend to those of us with MS and other mobility impairments. More and more, we don’t have to gaze up … Continue reading The Brilliance of the Disability RIghts Movement

New Video Surfaces of Franklin Roosevelt Walking

Few, if any,  presidents were as beloved as Franklin Roosevelt. Roosevelt came to office at a very volatile time in our nation’s history. He is credited with lifting our country out of the Great Depression, as well as rallying the country to defeat a murderous  despot. Roosevelt succeeded largely because of his intellect, his determination and his boundless charisma. Families would crowd around the radio … Continue reading New Video Surfaces of Franklin Roosevelt Walking