I am not the only one in the family with a disability. My sister , Susan Faitos, was born with XLH. This is a rare disease that causes weak bones and skeletal deformities, along with hearing loss.

After a lifetime of feeling helplessness and pity for her, I am proud to say that the “helpless” part has now been removed from my vocabulary. I just feel darn proud! She is now the executive director of the XHL Network  XLHnetwork.org.  and this is their fight song!

You go girl!

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